Seizure Action Plan Awareness Week is Feb 10-17, 2025 and in this latest episode we talk about seizure action planning basics and share our experiences developing these specialized plans for our loved ones with CDKL5 Deficiency Disorder. We also share some personal tales about others’ reactions to our kids' seizures and reflect on the realities we manage as our “normal” living with a severe refractory epilepsy.
SHOW NOTES
Check out our website and sign up for our quarterly newsletter at www.CDKL5inColor.com
Follow us @CDKL5inColor on Instagram, Facebook, LinkedIn, Blue Sky, & YouTube!
Email us to be on the show! CDKL5inColor@gmail.com
MENTIONED IN THE EPISODE:
rescue medication = a drug that can stop a seizure quickly in an emergency
hypoxic = having too little oxygen
PO / NPO = “by mouth” / “nothing by mouth”
