Living with Parkinson's Disease

Description

SEASON 2 The search for a co-host conitues with Corinne Franceschi (ex head teacher)

In this episode, Jo Parker and Corrine Franceschi discuss the challenges and realities of living with Parkinson's disease, particularly from the perspective of a caregiver. Corrine shares her personal experiences with her partner's diagnosis, the emotional and physical toll of caregiving, and the importance of awareness and support systems. They explore the impact of the disease on relationships, the necessity of maintaining one's identity, and practical advice for those newly diagnosed. The conversation emphasizes the need for greater understanding and resources for both patients and caregivers.

Takeaways

Parkinson's affects everyone differently, with over 40 symptoms.
Early onset Parkinson's tends to progress more slowly.
There is a lack of awareness about Parkinson's as a growing neurological condition.
Caregiving can lead to emotional detachment as a protective mechanism.
Support systems are crucial but often lacking in understanding of Parkinson's.
The impact of Parkinson's extends to family and relationships.
Maintaining personal identity is vital for caregivers.
Practical advice includes understanding treatment options and side effects.
Finding joy and personal fulfillment is essential for caregivers.
Establishing lasting power of attorney is important for managing care.

Timestamps

01:34 Introduction to Parkinson's Disease

02:36 Understanding Parkinson's: Symptoms and Progression

07:40 The Emotional Toll of Caregiving

12:00 Navigating Healthcare and Support Systems

16:04 The Impact on Relationships and Family

20:34 Not Feeling Guilty, Finding Joy and Maintaining Identity

22:22 Depression and Dignitas

24:23 Going into a Care Home

26:12 Lasting Power of Attorney

28:09 Practical Advice for New Diagnoses

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