In this deeply moving and urgent episode of The Royal Buzz Podcast, we sit down with Missy Ramirez — aka Jax’s mom — a mother on a mission to save her 10-year-old son’s life.
Jax is bravely battling IPEX, a rare and life-threatening autoimmune disorder with no known cure. Since age 6, he’s faced countless medical emergencies, including multiple ICU intubations. But despite the pain and fear, Jax continues to smile, fight, and inspire — even as his world remains confined by isolation.
Missy shares the raw reality of navigating a rare disease, the emotional weight her family carries, and the urgent need to raise several million dollars to help fund a critical clinical trial at Stanford University — one that could change everything.
This episode is more than a story — it's a call to action.
Because knowledge is power, and together, we just might reach the person or organization who can help fund hope.
🎧 Listen now on Spotify, Apple Podcasts, and iHeartRadio
🔍 Search: The Royal Buzz Podcast
💛 To support or learn more, follow #BeTheMatchForJax and the IPEX Foundation.
BeTheMatchforJax FB and IG, https://www.facebook.com/bethematchforjax
Jax needs a hero on Tiktok
#BeTheMatchForJax #IPEXAwareness #RareDiseaseWarrior #StandWithJax #TheRoyalBuzzPodcast #MothersOnAMission #PodcastWithPurpose #FundRareDiseaseResearch #SaveJax #StanfordClinicalTrial #KnowledgeIsPower #RealStoriesRealImpact
