In this onePERspective episode of asPERusual, doctoral trainee Sasha Kullman provides her key takeaways on Season 3, Episode 4, which featured Angie Hamson discussing the roles of professional patient partners in engaging children, youth, and families in quality improvement and governance.
Drawing on her own experience as a student researcher engaging directly with youth, Sasha explores three key takeaways from Angie’s story:
👉 The importance of who facilitates engagement — why roles like “patient partner in residence” are especially powerful because they are filled by someone with lived experience.
👉The need to integrate engagement into research culture — and how dedicated roles can help organizations move from tokenism to meaningful partnership.
👉The centrality of trust — including why patient and family partners shouldn’t have to share their full stories to be seen as credible contributors.
Sasha closes with a thoughtful question: How can we build research spaces where patient and family partners feel welcomed, respected, and trusted—whether or not they disclose their personal stories?
Whether you're new to patient engagement or deeply immersed in it, this short episode offers a reflective and practical lens on what it means to foster truly collaborative research environments.
👉 Check out the interactive transcript at asperusual.substack.com!
