In this onePERspective episode, doctoral student Sasha Kullman reflects on insights from Season 3, Episode 8 of asPERusual, which featured Sara Pot and Alicia Hilderley from RareKids-CAN. Sasha explores how RareKids-CAN’s embedded partnership model moves engagement beyond advisory panels toward shared leadership and organizational integration. She discusses what co-facilitation, trust, and “first-name culture” can teach emerging researchers about building safer, more collaborative spaces with youth and family partners—and how vulnerability and personal storytelling can strengthen connection and authenticity in research relationships.
