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Description

In this episode of Autoimmune Campfire, hosts Helen and Nona engage in a heartfelt discussion about self-advocacy for individuals living with chronic conditions. They share personal stories and insights on the challenges of advocating for oneself, especially as women, and the importance of clear communication with healthcare providers.

The conversation explores the need for setting boundaries, being honest with oneself, and the role of vulnerability in self-advocacy. Helen and Nona emphasize the significance of asking for support, staying curious, and taking someone along to important medical appointments where possible. They conclude with practical tips to empower listeners in their journey of advocating for themselves, encouraging self-compassion and clarity in their healthcare experiences.

00:00 Welcome to the Autoimmune Campfire

00:19 Weekend Recap and Personal Stories

03:09 Lessons in Advocacy

04:14 Defining Self-Advocacy

05:18 Challenges in Self-Advocacy

08:41 Personal Experiences with Self-Advocacy

24:36 Strategies for Effective Advocacy

32:20 Final Thoughts and Farewell

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Connect with us

If you want to learn more about who we are and what we do or to work with us, please check our respective websites:

https://www.nonajordan.com/

https://www.helensamsonmullen.com

We are delighted to work with our wonderful producer, Richard Wilmore at

https://www.makeyourdayricher.com/

Helen’s book recommendations from this episode:

Sarah Seidelmann’s Boundaries Make Love Possible: Self-respecting Boundaries

Brené Brown Dare to Lead

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We welcome you to the Campfire.



This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit theautoimmunecampfire.substack.com