In episode 80, host Kevin Schaefer talks with fellow SMA News Today contributors Michael Morale and DeAnn Runge. They discuss updates on Scholar Rock’s treatment, Apitegromab, as well as other news stories and forum topics. Finally, they highlight some recent columns from our main website.

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Links to news stories and forum topics:

-Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds: https://smanewstoday.com/news-posts/2021/03/30/rare-diseases-cost-us-nearly-1-trillion-economic-burden-2019-everylife-foundation-study/

- Apitegromab Over 1 Year Bolsters Motor Abilities of Types 2 and 3: TOPAZ Trial: https://smanewstoday.com/news-posts/2021/04/09/top-line-topaz-trial-data-support-apitegromab-muscle-targeted-scholar-rock-therapy/

- Sleep solutions: https://smanewstoday.com/forums/forums/topic/sleep-solutions-2/

- Trying to keep expectations in check: https://smanewstoday.com/forums/forums/topic/trying-to-keep-expectations-in-check/

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Links to columns:

-”Why I Never Had a Spinal Fusion: A Retrospective, 10 Years Later” by Sherry Toh: https://smanewstoday.com/columns/2021/04/14/spinal-fusion-retrospective-10-years-later/

-”An SMA Patient and a Pulmonologist Comment on the COVID-19 Vaccine” by Halsey Blocher: https://smanewstoday.com/columns/2021/03/26/covid-19-vaccine-comments-sma-patient-pulmonologist/

-”How to Build and Maintain a Network of ‘Masked Advocates’” by Ari Anderson: https://smanewstoday.com/columns/2021/03/25/building-maintain-network-masked-advocates/



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For the most up-to-date information regarding SMA, please visit http://www.smanewstoday.com