In this special bonus episode, Dr. Linda Blustein (Bendy Bodies https://bit.ly/m/BendyBodies) addresses listener questions about Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorders.



00:00 – Introduction

00:59 – Can PCPs diagnose hEDS without a geneticist?

03:19 – Limitations of the Beighton Score

05:40 – 2017 hEDS criteria & upcoming revisions

10:29 – How to find a knowledgeable provider

12:52 – SVT vs POTS in a patient with EDS family history

19:53 – How to ask your provider if they’re comfortable treating dysautonomia

22:17 – MTHFR variants and hEDS

29:23 – Celiac, gluten sensitivity & EDS

31:48 – Food allergy vs sensitivity testing

34:11 – Lipoedema and hypermobility

39:00 – LDN, Ketotifen, and Cromolyn

43:41 – Medication sensitivity in EDS/POTS/MCAS patients

45:47 – Wrap up and resources



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