The 26-year-old Ohioan has not let his rare genetic condition prevent him from having a rich life. But Trump’s second administration is creating new risks to his fragile health.



Want to make a difference for those with Epidermolysis Bullosa?



Visit Doggie’s Friends to support Shane’s charity.

https://give.cincinnatichildrens.org/site/TR/GivingHope/General?team_id=6519&pg=team&fr_id=1170&fbclid=IwAR1assquWaCOwFQECLz1xR-YnEZC1KmDkGOMu1QCaImi5nAJRrk5YIA5uhc



Visit the website of the EB Research Partnership, and check out this appeal for support from Jill and Ed Vedder.



https://www.ebresearch.org/

https://www.ebresearch.org/cause-the-wave.html