Judith shares how one of her twins was born with albinisim and how she stayed positive during the diagnosis and beyond. This episode will absolutely touch your heart, Judith is a natural story teller and captures hows she embraced her daughter's albinism and has seen the beauty through it all.
[3:15] Judith shares her busy life and routine with the twins
[6:25] She shares about her high risk her twin pregnancy journey
[7:27] How the ultrasound tech noticed the bridge of the nose on both of the babies
[8:20] Overwhelming feeling that finding out about one issue after a next,
[8:49] Joining a support group felt like accepting the mis-diagnosis she received
[9:57] The doctor noticed her daughter stopped growing and told her she needed a c-section
[11:12] Soon after birth, she noticed her skin was light in color and Judith wondered if she had albinisim
[13:14] Baby girl had to stay a little longer to gain some weight when brother got discharged.
[15:25] Judith and her family were concerned about others not accepting her
[19:45] How her faith helped her maintain positivity during trying time
[21:45] While trying to become pregnant, Judith's faith that she would become pregnant with twins was walked out when she prepared the extra bedroom for children
[25:55] Confirming the gender of the babies
[29:00] How she felt like going to a support group for parents of blind children was accepting that her daughter would be blind
[32:00] Sharing how people in her culture treat albinisim
[33:40] Judith shares how she explained to her daughter how she was beautiful and that different is beautiful
[35:05] Sharing how she is confident in school and speaking to others about her differences
[36:50] How she uses her story to help others and inspire parents going through it
[40:00] Embracing the journey of albinism and seeing the beauty in it all
CONNECT with Judith:
Learn more about albinism at www.albinism.org
Parents, download our free parent starter kit.
When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing.
Child life specialists, get affordable PDUs on-demand here.
Shop for your CLOC gear here.
Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.
