Description

In this episode, we chat with Lauren Shillinger, a fierce advocate for her children and the passage of Brynleigh's Act for Seizure Safe Schools. 

We talk about:

• Finding a cause of her daughter's epilepsy
• Tuberous Sclerosis Complex (TSC)
• Traveling to Texas for brain surgery
• Learning to navigate the system
• Turning grief and energy toward rare disease advocacy
• The TS Alliance and her work with the Maryland chapter
• Brynleigh's Act for Seizure Safe Schools
• Ways to introduce legislation
• Giving back and finding hope
• The joy found in paying it forward

Related episodes

Families That Advocate Together Stay Together with Laura Hatcher

Changing Spaces and Creating Hope with Christina Abernethy

Links

Maryland General Assembly - HB370

Maryland General Assembly - SB225 

Find your Maryland Representatives

Kindness is Golden book

Amanda Gorman, Youth Poet Laureate, has speech and auditory processing issues

Low Intensity Support Services - LISS