In this episode of "Rett et Nous," we delve into the poignant story of Sandra Batista, a Portuguese mother residing in Luxembourg, as she navigates the challenges of her daughter Lara's diagnosis with Rett Syndrome—a rare and incurable genetic disorder. Sandra shares her personal journey, from the initial signs and the arduous path to diagnosis, to the daily realities of managing the condition and finding support within the community. This episode aims to shed light on the resilience and strength of families affected by Rett Syndrome, offering insights and hope to listeners facing similar challenges.
Hébergé par Ausha. Visitez ausha.co/politique-de-confidentialite pour plus d'informations.
