EPISODE TITLE: Winning the Fight Against ALS-Part 1 (with Deanna Tedone and Dr. Vincent Tedone)
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk about Amyotrophic Lateral Sclerosis (ALS) or, Lou Gehrig’s Disease with Dr. Tedone, the founder of the Deanna Protocol and his daughter, Deanna, who was diagnosed with ALS 13 years ago.
In this podcast, Dr. Vincent Tedone and Deanna Tedone discuss:
- The development of the Deanna Protocol
- Dr. Vincent Tedone describes his research and the development of the Deanna Protocol, which includes AKG and GABA.
- Deanna experienced significant improvements in muscle symptoms and functional abilities after receiving the AKG and GABA combination.
- The Deanna Protocol was tested on ALS mice, showing suppressed muscle symptoms, slowed disease progression, and increased energy production.The findings were documented in a paper and a book, "The Deanna Protocol: Winning the Fight for Neurodegenerative Diseases."
- Discovery of Borrelia Infection
- In 2015, Deanna was tested for a Borrelia infection, which was positive, despite previous negative results from commercial laboratories.
- Deanna developed severe meningitis, and Dr. Vincent Tedone convinced the infectious disease doctor to treat her with IV antibiotics.
- The IV antibiotics successfully treated Deanna's pain, and she continued the post-antibiotic regimen until 2018.
- Dr. Vincent Tedone believes that all neurodegenerative diseases are caused by infections, primarily Borrelia.
- Challenges and Resistance in Medical Research
- Dr. Vincent Tedone discusses the challenges and resistance he faced when trying to get academic institutions to fund clinical trials for the Deanna Protocol.
- He emphasizes the importance of treating the cause of the disease rather than just the symptoms.
- Dr. Vincent Tedone shares anecdotal evidence of the Deanna Protocol's effectiveness in treating Alzheimer's disease and other neurodegenerative diseases.
- He highlights the need for further research and the potential for the Deanna Protocol to be effective in treating various neurodegenerative diseases.
- Clinical Experience and Intensive Therapy
- Doro, shares her clinical experience working with Deanna and the intensive therapy program they designed.
- Deanna's progress and improvements were significant, and the traditional ALS progression did not occur.
- Doro emphasizes the importance of not treating Deanna like she has ALS and the positive changes observed in Deanna's muscle building and overall function.
- The discussion shifts to the role of glutamate, AKG, and GABA in the Deanna Protocol and their impact on nerve cell communication.
- Impact of Borrelia Infection and Immune System
- Dr. Vincent Tedone explains the impact of Borrelia infection on the immune system and the body's response to inflammation.
- He describes the role of the gut microbiome in controlling the brain and the potential link between vaccines and autism.
- The conversation touches on the importance of the immune system in maintaining health and the potential impact of mRNA vaccines on the immune system.
- Dr. Vincent Tedone discusses the common denominator in neurodegenerative diseases and the potential for the Deanna Protocol to be effective in treating various conditions.
- Conclusion and Future Research
- Dr. Vincent Tedone expresses his frustration with the lack of focus on the cause of diseases and the need for further research.
- He shares anecdotal evidence of the Deanna Protocol's effectiveness in treating Alzheimer's disease and other conditions.
- The discussion highlights the importance of treating the cause of diseases rather than just the symptoms.
- The episode concludes with a call for further research and the potential for the Deanna Protocol to revolutionize the treatment of neurodegenerative diseases.
Resources and References:
- ALS specific websites & show References
- Maintaining Optimal Quality of Life
- Support groups
- Proper equipment & Knowledge of use
- RESOURCES:
- ALS Association-enter zip code to find assistance in your state. In FL: General Inquiries
- Community support groups & counseling
- Transportation assistance
- Equipment loan bank-people with ALS can borrow assistive equipment on long term basis
- Assistance finding & obtaining community & government resources
- Multidisciplinary medical care under one roof
- FAAST-FLORIDA ALLIANCE FOR ASSISTIVE SERVICES & TECHONOLGY: org
- FAAST is a program designed to provide assistive technology to Floridians with disabilities and their loved ones. This program offers a range of activities, including device loans, demonstrations, reutilization, and training, to ensure Floridians have access to the latest in assistive technology. Additionally, FAAST provides information and assistance, as well as a financing program available state-wide. With a commitment to accessibility and innovation, FAAST is leading the way in assistive technology in the state of Florida.
- CENTER FOR ASSISTIVE TECHNOLOGY-University of Buffalo
- The Center for Assistive Technology (CAT) is a non-profit organization that conducts research and provides educational and service programs to increase consumer knowledge related to assistive technology for persons with disabilities.
- CAT is also the Western New York Regional Center for the New York State TRAID Program, for which it coordinates information on technology-related expertise and resources for people with disabilities.
- SHEPHERD CENTER-CENTER FOR ASSISTIVE TECHNOLOGIES Atlanta, GA
- The Center for Assistive Technologies at Shepherd Center helps individuals regain independence after a neurological injury or condition. Challenges with mobility and cognitive function can impact daily activities like using devices, controlling home environments, and driving. Our team develops, tests, and customizes assistive technologies to support rehabilitation, empowering you to navigate life with greater ease and autonomy.
- UPMC CENTER FOR ASSISTIVE TECHNOLOGY-Pittsburgh, PA
- The CAT is an interdisciplinary center comprising multiple outpatient clinics that offer a variety of services to assist you.
- University of North Carolina Wilmington Center for Assistive Technology
- Miami University Center for Assistive Technology Oxford, OH
- Assistive Technology Center New Jersey
- Utah Center for Assistive Technology
- University of South Carolina Assistive Technology Program
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
THERAPY PRACTICE RESOURCES:
DEB’S RESOURCES
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
- Guest Request Form
- MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
