Description

Welcome to AiArthritis Voices 360! In this episode, Leila, the Health Education Manager at AiArthritis, delves into the impact of AiArthritis diseases on reproductive health, sharing insights from the RNS and ACR 2023 conferences. Leila delves into the myriad challenges individuals encounter, including delayed puberty, heightened disease activity during menstrual cycles, and the heightened risks associated with unplanned pregnancies. Navigating the intricate landscape of family planning within the AiArthritis community, we discuss the significance of birth control methods and the impact of medications on fertility.

Drawing from personal experience with lupus, Leila discusses preserving fertility, assisted reproductive technologies, and navigating family planning. Join us on this episode to learn more about reproductive health with AiArthritis diseases and hear Leila’s personal experience with family planning! 

If you have questions or would like to share your own family planning story, please feel free to email Leila at Leila@AiArthritis.org.

Episode Highlights: 

• Explore the latest research insights on how AiArthritis diseases affect reproduction from the RNS and ACR 2023 conferences.
• Join Leila on a personal journey, navigating reproductive health with Lupus.
• Uncover challenges in family planning, from medication impacts to the significance of birth control in AiArthritis.
• Learn about medication effects on fertility and preservation strategies for those with AiArthritis.

Resources & Links:

• https://mothertobaby.org/
• http://lupuspregnancy.org/
• https://www.mamasfacingforward.com/
• https://www.graceandable.com/pages/chilliredcompressionglove
• RNS Go With Us video about Lupus and Pregnancy: https://youtu.be/tgeIW0pxF8M?feature=shared
• ACR Go With Us video about Reproductive Health: https://youtu.be/rYGs1fevQWU?feature=shared

• Related Episodes:

• Ep 11: Oh Mama! Pregnancy Planning with a Chronic Illness : https://www.aiarthritis.org/talkshow-ep11
• Ep 51: Oh Mama! Physical and Emotional Support Postpartum : https://www.aiarthritis.org/talkshow-ep51
• Ep 89: Surgery with an AiArthritis Disease : https://www.aiarthritis.org/talkshow-ep89 

Meet Our Host:

• Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus Nephritis and Sjögren’s Syndrome. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Leila is on social media as @LupusLifestyle.Lei sharing bits and pieces about her life with lupus and connecting with others. Connect with her on Instagram or TikTok.

Connect with Leila:

    Instagram: @lupus.lifestyle.lei

     LinkedIn: www.linkedin.com/in/leila-lagandaon

      Facebook: @leilaaiarthritis

     TikTok: @lupus.lifestyle.lei

Donate to Support the Show: https://www.aiarthritis.org/donate 

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AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org).  Be sure to check out our top-rated show on Feedspot!