In this episode we discuss how structural racism like underfunded research, inadequate care, and misconceptions about sickle cell disease have hindered treatment advancements. We cover a story of how the fragmented healthcare system can cause more harm for SCD patients.
And we highlight Sick Cells, an advocacy organization elevating the voices of the sickle cell community to influence positive change.
Visit the Sick Cells website to learn about their advocacy efforts, join their ambassador program, share your story, and to donate so they can better serve the sickle cell community.
Follow them on Instagram, FaceBook, Twitter, YouTube, and LinkedIn.
If you would like to suggest a topic we should discuss, share your own personal story, or shoutout an organization or individual email us at distrustanddisparities@gmail.com.
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Visit our Buy Me A Coffee page to support the podcast.
Resources
Black People and Sickle Cell Anemia: Your Questions Answered – Healthline
Sicklepedia: Sickle Cell Disorders – Sickle Cell 101
These Sisters With Sickle Cell Had Devastating, and Preventable, Strokes – The New York Times
The Face of Sickle Cell: Kyra and Kami Crawford – Black Video News
