David delves into the transformative journey of Maria Galifianakis, a powerhouse advocate in the autism community and founder of Helios Rising. Maria shares her personal and professional experiences, from her initial challenges navigating her daughter’s severe medical issues and communication barriers to the breakthrough moment of discovering spelled communication. The episode emphasizes the critical importance of presuming competence in non-speaking individuals and highlights the work being done by Helios Rising to provide accessibility and support for families in need. Key topics discussed include the early days of Ivanni's challenges, the limitations of past therapies like ABA, and the impactful role of inclusive and innovative communication methods. This heartwarming and inspiring conversation also touches on the larger advocacy movement and the necessity of grassroots efforts in pushing for systemic change.
Topics
00:40 Meet Today's Guest: Maria Galifianakis
01:07 Maria's Journey with Her Daughter
02:46 Challenges and Misdiagnoses
09:33 Discovering Effective Communication Methods
17:54 Maria's Professional Background and Advocacy
23:37 Founding Helios Rising
27:31 Reflecting on Past Experiences
28:13 Challenges and Optimism
29:36 Inclusive Surfing Camp
30:47 Health Improvements and Underreported Issues
31:53 The Vaccine Debate
33:31 Helios Rising: Vision and Progress
35:31 Spelling Communication Success Stories
44:02 Autism Fact or Fiction
50:24 Tip of the Week
54:19 Parent Confessions
59:35 Conclusion and Contact Information
