David explores the nuanced world of advocacy and entitlement with guest Shannon Striner. Shannon, a devoted mother and blogger, shares her journey raising her daughter Sienna, who has Down Syndrome. They discuss the challenges of finding the right educational environment, the importance of advocating without slipping into entitlement, and the powerful impact of inclusion and innovation in creating better outcomes. Shannon's practical tips and poignant reflections offer inspiration and guidance for families navigating similar paths.
More at https://thislifewegot.com/
Topics
00:48 Exploring Advocacy vs. Entitlement
01:22 Meet Shannon Striner: A Fierce Advocate
02:37 Navigating the School System
06:39 Challenges in Private vs. Public Schools
11:35 Fighting for Inclusive Education
23:47 The Thin Line Between Advocacy and Entitlement
32:42 Navigating Financial Assistance for Families
33:05 The Emotional Struggles of Acceptance
33:59 The Importance of Utilizing Available Resources
36:29 Healthcare Costs and Insurance Limitations
38:00 Advocating for Medicaid and State Programs
38:43 Balancing Work and Caregiving
39:50 Learning and Implementing New Communication Strategies
41:31 The Power of Advocacy and Community Support
45:06 Tip of the Week: Daily Communication Logs
48:48 Fact or Fiction: Debunking Myths About Down Syndrome
52:35 Parent Confessions: Resentment and Gratitude
57:45 The Intersection of Politics and Disability Advocacy
01:02:43 Final Thoughts and Encouragement
