Description

(Please note, this episode was recorded under the name PWS Connect, and we have since changed the name to PWS United.)

Carrie and Anne, from PWSA | USA's Communication Dept., share the news and resources from PWSA | USA's Pulse newsletter, edition #104. Our Pulse covers upcoming fundraising events and conferences, advocacy highlights and actions, family support resources and offerings, the latest in research, trial opportunities and more. The Pulse newsletter is published digitally every Friday. Future podcast Pulse episodes will air the following Tuesday. 

Links:

Planned Giving Webpage

"Less Than No One" Spotlight

United in Hope Conference

United in Hope Mural

RMC Inaugural Fundraiser

Congressional Letter of Support Blog Post

Military Family Form

Rare Aware Art Share Submission Form

Interdependence Blog Post

Ask Nurse Lynn "BM & GI Concerns" 

Aging research Webinar Recordings

Call for Abstracts

Project ECHO 

Acadia Webinar Recording

TREND Launch Report

Harmony TEMPO Trial Sites

Gastroparesis Article

Intro Music: https://www.bensound.com/; License certificate #2242442