In this episode of the Roots for Churches podcast, Melanie Cave speaks with Dr Penny Pullan about the challenges faced by individuals with hidden illnesses, particularly in the context of church engagement. They discuss the fluctuating nature of chronic illnesses, the impact of church culture on inclusion, and the importance of leadership in fostering a supportive environment.
Penny shares insights from her research on how churches can better support those with unseen illnesses and create a culture of belonging. The conversation emphasizes the need for practical steps that church leaders can take to ensure that all members feel valued and included, regardless of their health status.
Takeaways
Hidden illnesses are often misunderstood and overlooked in church settings.
Fluctuating conditions make it difficult for individuals to participate consistently in church activities.
Research shows that many people with chronic illnesses feel they do not belong in their church communities.
Church rotas can be particularly challenging for those with invisible illnesses.
Leadership plays a crucial role in fostering an inclusive church environment.
Many individuals feel valued for what they do, not who they are.
Church harms can be physical, mental, emotional, and spiritual for those with chronic illnesses.
Online church services can provide a level playing field for participation.
Creating a culture of belonging requires intentional effort from church leaders.
Practical steps can be taken to improve inclusion for those with unseen illnesses.
Sound Bites
'I have disappeared.'
'To belong, you need to be missed.'
'We need to transform culture.'
Keywords
hidden illnesses, chronic illness, church support, inclusion, community, long COVID, ME, church leadership, belonging, research insights
Chapters
00:00 Introduction to Hidden Disabilities
03:16 Understanding Unseen Illnesses
06:03 The Fluctuating Nature of Illness
08:37 Researching Unseen Illnesses
11:33 Themes from Research Findings
14:07 Challenges Faced by Individuals with Unseen Illnesses
16:46 The Impact of Church on Individuals with Illnesses
23:03 Raising Awareness of Invisible Illnesses
23:41 Experiences of Exclusion and Stereotyping
24:43 The Impact of Abandonment in Community
26:54 The Role of Leadership in Inclusion
29:01 Creating a Culture of Belonging
30:33 The Importance of Presence and Contribution
31:57 Positive Changes Through Online Engagement
33:13 Leadership and Flexibility in Worship
35:18 Bridging the Gap Between Theology and Practice
36:36 Action Steps for Church Leaders
41:35 Small Steps Towards Inclusion
43:17 Resources for Further Learning
45:15 Embracing Diversity in Faith
46:12 Resources for Inclusive Church Leadership
Show notes
