John and Dee Foster were severely harmed by benzodiazepines—yet instead of staying silent, they spent years fighting for change. Their persistence paid off: the new ASAM benzodiazepine deprescribing guidelines now formally acknowledge physical dependence, protracted withdrawal, the need for slow, patient-led tapers that can take months to years, the importance of shared decision-making, and the role of peer and non-drug supports.
John and Dee share what they won for patients, and why these guidelines could mark a turning point in holding the medical system accountable.