Part2: Erin gives an update on Luella's current condition, we delve into the relationship and support Erin and Wendy give to each other.
Erin is the mother of Luella, a gorgeous 18-month-old who suffers from West Syndrome. What gets her through her day, is the support she receives from her mum, Wendy. Luella has a rare type of epilepsy called West syndrome which causes her to suffer through hundreds of seizures/spasms a day. She is making meeting milestones that, in her original prognosis, wasn't possible thanks in large part to Erin and the wonderful intense therapies she goes to at NAPA.
Wendy is a very hands-on grandmother and mother, which has helped Erin through her postnatal depression. She allows Erin and her husband Dave, a night off now and again, which is essential for any parent, let alone parents who have to manage the added stresses of Luella's condition. As Erin says "Luella isn't a burden, it's her seizures that are a burden!"
There were many tears during this episode, but Erin has always been happy to push through the tears, so that, as a mum, and also as Luella's voice, she is heard. There needs to be more research and funding into West Syndrome and give parents and guardians more support through NDIS.
This conversation is a two-part episode, tune in next week for the second half of this conversation with an amazing mother and daughter. Thank you again to Erin and Wendy for sharing their story and being the most amazing advocates for Luella.
If you have an amazing story to share with us, please DM or email. If you would like to be a sponsor, please email mothersanddaughterspod@gmail.com
Thanks for tuning in, stay safe.
Hosted on Acast. See acast.com/privacy for more information.
