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Description

Today on the first Researcher Revealed podcast, early career researcher Sandra Bartolomeu Pires joins me to discuss collaboration.

Sandra's top tips for successful collaboration:

1) Be visible - "you bake a cake to share it"

2) Ask leaders in your field for opportunities - "they'll say yes"

3) Don't say no to opportunities because you are scared - "do it scared"

Sandra is a nurse researcher, currently completing her PhD at the University of Southampton (UK) while working remotely from Portugal. Her research interests are around integrated care and long-term neurological conditions. She graduated from nursing in Portugal in 2010 working first as as staff nurse in long-term care settings. Her patients’ complex needs inspired her to learn more. She completed a self-funded Master’s in Palliative Care in 2014, focused on conducting family meetings in a palliative care context. She emigrated to Southampton, UK where she worked as staff nurse in a medicine ward for a couple of months, before moving into the Research & Development department. From 2015 Sandra worked as research nurse and research sister in diverse studies and clinical trials, developing an expertise in neurodegenerative diseases. She is passionate about supporting people impacted by long term neurological diseases, particularly those affected by Huntington’s Disease. In 2020 she secured an NIHR ARC Wessex PhD scholarship to research the development of an integrated care model for people and families living with Huntington’s Disease. Sandra has recently returned to Portugal, where she is focused on improving outcomes for people affected by Huntington’s Disease by finishing her PhD research with the University of Southampton.

Find Sandra:

Instagram: @integrate_hd

LinkedIn: https://uk.linkedin.com/in/sandra-bartolomeu-pires-841594190

Twitter: @BartolomeuPires

Collaboration outputs:

Vester, L. B., [...], Bartolomeu, S., & Portillo, M. C. (2023). A Parkinson care-coordinator may make a difference: A scoping review on multi-sectoral integrated care initiatives for people living with Parkinson’s disease and their caregivers.

https://doi.org/10.1016/j.pec.2023.107931

Nielsen, T., [...], Bartolomeu, S.,Portillo, M.C. (2022). Exploring health and social services in Denmark, Norway, Spain and the United Kingdom for the development of Parkinson’s care pathways. A document analysis.

https://doi.org/10.1111/hsc.13970 3)

Fearn, S., Bartolomeu Pires, S., [...], & Kipps, C. (2021). The Causes and Impact of Crisis for People with Parkinson’s Disease: A Patient and Carer Perspective. https://doi.org/10.3233/JPD-212641

Conference

The European Huntington Association Conference in Belgium - Sandra is a part of the European Huntington's Disease Network.

https://eurohuntington.org/eha-conference-in-belgium/

More about Sandra's PhD experience:

"Don't do it"

https://www.arc-wx.nihr.ac.uk/blogs-1/sandra-bartolomeu-pires

"Life has no respect for GANTT charts"

https://www.arc-wx.nihr.ac.uk/post/blog-life-has-no-respect-for-gantt-charts-by-sandra-bartolomeu-pires

**The content in this podcast is the personal opinions and experiences of the researchers (Dr Rosalynn Austin and Sandra Bartolomeu Pires) and not that of any of the institutions that may be affiliated with.


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