John O'Brien: John O'Brien was a renowned figure in the field of disabilities, celebrated for his contributions to person-centered planning and advocacy for people with disabilities and their families. Over his 50-year career, he engaged in writing, teaching, and consulting globally. John is considered one of the pioneers of person-centered planning alongside his wife, Connie Lyle O'Brien, and colleague Beth Mount. Known for his intellect, generosity, and humor, John was deeply respected in his field.
Episode Summary:
In this insightful episode, host Chris Liuzzo converses with the late John O'Brien about the concept of person-centered work, reflecting on John's impactful career and philosophy. Recorded in May 2025, shortly before John's passing, this discussion offers profound reflections on the notions of disability, dependence, and what constitutes a "good life." John details his thoughts on "real wealth" within person-centered planning
John expands on the importance of shifting perspectives within disability services from simply providing protective oversight to forming relationships that drive shared responsibility in changing the world. He introduces the notion of "real wealth" as a framework comprising assets, capabilities, networks, relationships, and spirit. The conversation delves into the current challenges faced by the Medicaid-dependent support systems and argues for a broader understanding of wealth that includes but extends beyond material measures. John emphasizes an interdependent worldview, encouraging a focus on human flourishing, joy, and the intrinsic value of relationships and spirit in crafting fulfilling lives for people with disabilities.
Key Takeaways:
Shift in Perspective: Transition from protective service models to fostering relationships where there is shared responsibility for creating change.
Concept of Real Wealth: Emphasizes non-material dimensions of wealth, including relationships and spiritual fulfillment, beyond just financial assets.
Interdependence: Highlights the importance of acknowledging the interdependence inherent in human lives, especially evident in the experiences of people with disabilities.
Adaptive Challenges: Discusses the current and future challenges facing Medicaid and support systems, pointing out the importance of recognizing broader societal roles and impacts.
Emphasis on Human Flourishing: Advocates for a shift in dialogue from addressing basic needs to enriching lives through joy, relationships, and personal growth.
Notable Quotes:
"Together we are responsible for changing our world."
"What is it to live a good, full life?"
"Eligibility is an asset, but it's only one."
"People with intellectual disabilities are an embodied sign of human interdependence."
"We need to be conscious of our real wealth."
Resources:
New York Alliance for Inclusion and Innovation
New York State Council on Developmental Disabilities
Medicaid and Social Security Programs
For a deeper understanding of John O'Brien's ideas and to explore more on creating a person-centered world for people with disabilities, listen to the full episode. Stay tuned for more enlightening discussions in this podcast series.
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