Marking Hospice UK's Dying Matters Awareness Week (https://www.hospiceuk.org/our-campaigns/dying-matters) Liz Pryor from the Anne Robson Trust talks frankly about an essential conversation that is often avoided until it is too late. The Trust (https://annerobsontrust.org.uk/) provides advice, training and companionship, working alongside partner healthcare organisations, bringing support, comfort and compassion to those nearing the end of life, and those closest to them.
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Liz set up the trust in memory of her mother, providing resources, workshops, and work with healthcare organisations to provide support for those dying. The most important thing to do for those supporting relatives and friends who are near end of life, is to have conversations as early as possible - rather than making hasty plans during their final days. There is a helpful "my wishes" checklist available on the Anne Robson Trust website.
Liz explains the process of dying, including physical changes and the importance of understanding these stages. She mentions the concept of "Cheyne-Stokes breathing" and other physical signs that indicate the end of life. She also highlights the importance of having a calm and supportive environment for the dying person.
Family members should ask direct questions about the expected timeline of death and to have early conversations about end-of-life care. it is also important to have advanced care plans, DNRs if appropriate, and other legal documents in place. Liz also explains the role of hospices in providing support both in hospitals and at home, and the importance of accessing these services.
Liz introduces the concept of death doulas or soul midwives, who provide spiritual support during the end-of-life journey. She mentions the Anne Robson Trust's new project to engage volunteers to support people in their homes as they die and highlights the importance of moving end-of-life care back into the community to reduce emergency admissions and provide better support.
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