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In this episode, Laura discusses clinical trials with Martin Naley, Alyson Tischler, Sheila McGlown, and Abigail Johnston. Martin Naley is a Clinical Informatics Specialist at Ciitizen, a free clinical matching service. Alyson Tischler, Sheila McGlown, and Abigail Johnston are three women living with metastatic breast cancer. They talk about what clinical trials are, different types of trials, how to figure out eligibility, and their experiences with understanding all of the various terminologies. Martin Naley brings up statistics regarding the demographics of clinical trials which leads to a conversation about how to make clinical trials more accessible. The podcast ends with each individual giving a piece of advice related to clinical trials.
♡ TOPICS DISCUSSED :
⟡What is a clinical trial? What options are available? Where can I learn more about clinical trials? [3:20]
⟡ Martin Naley’s introduction [10:15]
⟡ Reports on treatments and differences between Phase 1, Phase 2, and Phase 3 Trials [16:40]
⟡ Alyson Tischler’s introduction: breast cancer diagnosis, treatment, and recurrence [21:00]
⟡ Sheila McGlown’s introduction: breast cancer diagnosis, symptoms, and treatment [24:30]
⟡ Abigail Johnston’s introduction: stage IV cancer, emergency surgery, and clinical trial experience [26:45]
⟡ Making clinical trials more accessible and easier to understand [34:30]
⟡ Best practices to ensure health and safety of individuals participating in clinical trials and to inform individuals [37:09]
⟡ What to expect when reaching out to Ciitizen and clinical trial matching [46:00]
⟡ Advice regarding clinical trials [55:00]
♡ RESOURCES MENTIONED
⟡ Ciitizen.com/SBCClinicalTrials Ciitizen is free, helps you gain access and control to all your medical records and now, can also help you explore your custom Clinical Trial options!
⟡ Information on Clinical Trials:
⟡ Events
♡ QUOTES WE LOVE
⟡”Are you going to call me a subject or a patient? Do I look like a subject? No, I don't look like a subject. I look like a patient. Don't call me a subject. But then that's another thing, a racial, cultural difference, you know, or experimental drug.
⟡ ‘’The way information is communicated to patients and something I really feel passionate about just, I bringing that to light for a few reasons. If you're in that situation, and you're considering a trial, and you have no idea what they're talking about, just realize you're not alone, as most patients don't have any idea.”
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