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The second part of Lucy's interview with columnist and advocate, Dunstan Nicol-Wilson. The continue to discuss parallels between Dunstan's experiences and the findings of the No One's Listening Report. And also how Dunstan's column for Sickle Cell Disease News drove him into raising awareness for the Give Blood Spread Love campaign. Plus mush more!
About Sickle Cell from The Sickle Cell Society
Give Blood Spread Love donor registration form
The ‘No One’s Listening’ report, which is based on the inquiry’s findings, was jointly published by the APPG on Sickle Cell and Thalassaemia and the Sickle Cell Society, a national charity that supports and represents people affected by sickle cell disorders. Findings discussed in this episode from the enquiry are taken directly from this report.
Sickle Cell Sagasby Dunstan Nicol-Wilson for Sickle Cell Disease News
About Blood Transfusions for Sickle Cell Disease
A must read book 'The Immortal Cells of Henrietta Lacks' by Rebecca Skloot - see why at The Henrietta Lacks Foundation
Thank you to our 2022 Partners: Alexion, Amicus Therapeutics, Biomarin, Bionical Emas, Healx, Kyowa Kirin, Orchard Therapeutics, PTC Therapeutics and Sobi.
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M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare
Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.
M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.
M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare