Description

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This episode explores the emotional journey of parents facing a rare disease diagnosis in their child. It focuses on the story of Ilissa Reich and her son Eli, who was diagnosed with FOXG1 syndrome at a young age. FOXG1 is a severe neurological and developmental disorder impacting a child's ability to walk, talk, and develop normally.

What You Will Learn:

• The challenges faced by families dealing with FOXG1 syndrome.
• The symptoms of FOXG1 syndrome, including epilepsy, developmental delays, and vision problems.
• The work of Believe in a Cure, a non-profit founded by Ilissa Reich to raise funds for FOXG1 research and support families.
• The importance of community support for families with special needs children.

About ‘Believe in a Cure’:

Believe in a Cure is a non-profit organization dedicated to finding a cure for FOXG1 syndrome. Founded in 2019, they have raised millions of dollars and supported numerous research projects globally.

Connect with Believe in a Cure:

• Website: https://www.webelieveinacure.org/
• Instagram: @ilissareich

This episode is a powerful testament to the strength and determination of parents advocating for their children's health.

Pearl Mashour is a Master Women Empowerment Coach, Life Coach & Multiple Subject Credentialed Teacher.

Learn more about Pearl Mashour at www.femalefluence.com

• Connect with me on IG @pearlmashour_femalefluence
• Follow along on TikTok
• Subscribe on YouTube
• Connect with me on FB @femalefluence
• Email: info@femalefluence.org