In this week's episode, Jen shares her perspective as a parent in her child’s rare disease journey. It can be immensely challenging making healthcare decisions for yourself, let alone a child. Join Taylor and Liz in this week's episode focusing on the impact of rare disease on both the parent and siblings of a rare disease patient.
Please see https://willspower.org/ if interested in learning more about the foundation started by Jen's family in Canada.
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