In this episode we're talking all about navigating a new cystic fibrosis (CF) diagnosis.
Our host Lucy sits down for a virtual tea and chat with Jade, whose 8-year-old daughter Penelope was diagnosed with CF at two days old. Jade, who recently featured in our new parent pack, talks about some of the emotions she felt when they received the diagnosis, her advice for other parents, and how she explains CF to Penelope.
Lucy also catches up with my own mum, Jill, to talk about her work as a volunteer for our CF Connect peer support service for parents of children and young people with CF.
Read the full transcript.
- For more information and support on any of the issues we've talked about in this podcast, you can call our Helpline on 0300 373 1000, or email helpline@cysticfibrosis.org.uk, or message us on WhatsApp.
- If your baby has just been diagnosed with CF, you might not know where to start. We've pulled together lots of information to help make things easier. Download our guide for families.
- Speak to a trained volunteer who also has a child with CF through our CF Connect peer support service.
- We recognise that for those with children who don't benefit from Kaftrio, the new diagnosis journey can feel very different. Please get in touch with our Helpline with any questions you might have.
