Description

In episode five, our host, Lucy, talks all things research with Dr Laurie Smith from the University of Sheffield, who specialises in understanding how the lungs of people with CF are affected by the condition and Dan Beever, who has CF himself and works to ensure that patients are involved in the purpose, design and implementation of research studies and clinical trials.

They chat about the first new Strategic Research Centre (SRC), Pulmonary Magnetic Resonance Imaging for Cystic Fibrosis (MAGNIFY study), they are both involved with which will investigate whether an exciting new type of magnetic resonance imaging (MRI) could be used to track subtle changes in lung health over time.

We also hear from Dr Lucy Allen, Director of Research and Healthcare Data at the Trust, to give us the lowdown on the research we fund and the importance of these SRCs for the CF community.

Read the full episode transcript.

• For more information and support on any of the issues we've talked about in this podcast, you can call our Helpline on 0300 373 1000, or email helpline@cysticfibrosis.org.uk, or message us on WhatsApp.
• If you want to take part in a clinical trial, take a look at our Trials Tracker, which brings together all CF trials currently recruiting in the UK. You can find trials you can take part in both in your region and further afield.
• Join our Involvement Group to share your lived experience and insights to influence the work of the Trust and future research. Whether you have CF yourself or are a parent, partner, or family member of someone with CF, you're welcome to join. By sharing your insights, you can make sure that the lived experiences of people with CF are at the core of everything we do.   

The podcast is also available on Spotify and Apple Podcasts.