When Amanda Gilpin first noticed some signs that her little girl Hollie was lagging a bit at school, she wasn't too concerned. But when she developed more sinister symptoms she sought medical help, and the truth was terrifying. Two years ago, Hollie was diagnosed with an extremely rare and incurable form of childhood dementia, known as Batten Disease - she's one of just two children in Australia who have it. Now, her family is hoping for a miracle, travelling far away from their home in Western Australia's Pilbara over to the US , hoping Hollie will one of only three children in the world to be selected for a groundbreaking new trial.

SPONSOER: emMOO designs was created by new mum and business owner Steph Sullivan. Steph loves beautiful baby clothes and accessories and sells personalised lush cotton towels appliquéd with an individual initial in liberty, gingham and linen prints, along with gorgeous practical baby bibs and stunning gift boxes for babies and mums that are posted Australia wide. Have a look online at www.emmoodesigns.com.au.