Allison Breininger, an experienced educator with an MA in Education, took on a new role at 31: caregiver for her husband, Sean, who was diagnosed with the rare genetic disease Fanconi Anemia. Throughout the past eleven years, she supported him through a bone marrow transplant and various cancers. This journey made Allison realize the lack of support for caregivers, leading her to establish the non-profit, The Negative Space, to transform caregiver perception and assistance.
The unexpected twist in their lives significantly challenged their resilience and threatened their dreams. Despite this, Allison's dedication to her husband and herself remained a shining light amidst uncertainty. As a resilient caregiver, she navigates the delicate balance between productivity and self-care amidst challenges. Her powerful story showcases the impact of love and resilience in adversity.
In this episode, you will be able to:
About Allison:
Allison Breininger holds an MA in Education and spent two decades in various roles within the field. At the age of 31, she became a caregiver for her husband, Sean, who was diagnosed with the rare genetic disease Fanconi Anemia. Throughout the past eleven years, she has supported him through a bone marrow transplant and battles with cancer affecting his tongue, throat, gums, bladder, and skin. This firsthand experience has shown her the vital yet overlooked and unsupported role of caregivers. Motivated by her insights, Allison established the non-profit organization, The Negative Space, to change the perception and support for caregivers.
Through The Negative Space, Allison sheds light on caregiving realities, offers direct services to caregivers, and educates and equips their supporters with practical tools and strategies. She co-hosts the In Sickness podcast, provides individual coaching nationwide, facilitates support groups, partners with organizations, and sells caregiver gift boxes.
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Podcast URL
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Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
