Patrick James Lynch is a Hemophilia patient, and advocate, fim maker and podcaster. His films include Bomardier Blood, Deliver Us and My Beautiful Stutter as well as many others, He has been won several awards including the Rare impact award from the National Association for Rare Disorders (NORD) the Meritorious service award in and he has also been a keynote speaker for the World Federation of Hemophilia WFH. Patrick dedicates his work to his brother who sadly passed away in 2007 at the age of 89. His brother was also a hemophilia patient and a retired news anchor from Pittsburgh, PA. Patrick now lives in California where he continues to film and advocate for rare conditions through story telling.
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Chapter Markers
00:00 Intro
04:01 Hemophilia explained
05:43 Patrick's brother had hemophilia also
06:04 Genetics
06:53 Path to Film Making & Advocacy
13:51 How Adam's memory has shaped Patrick's approach to Advocacy and story Telling
15:32 Transgorming challenges into advocay
19:22 Inspiration for believe Limited
21:11 Coming up with a name for the company
23:06 How awards have influenced Patrick's work
25:20 Key messages from speaking engagements
28:41 Potential for advocacy extending to other diseases
31:09 Upcoming projects
35:05 Advice to Others
38:18 Long term Goals
40:10 conclusion
