In this episode of Nutrition Equity I talk with Jessica, a patient with both Classical Homocystinuria and Diabetes. Jessica will talk about the complexities of dealing with two conflicting conditons. Homocystinuria requires a low protein diet and Diabetes requires you to watch your carbs and sugar intake. While nuts aren't allowed for most on a low protein diet trace amounts like you would find in nut or seed milk are ok. Jessica has a nut allergy and depends on oat milk instead of the nut milks. She also talks about her challenges with the healthcare system and how her diets with Homocystinuria and Diabetes are complete opposites.
Chapter Markers
00:00 Intro
02:55 Diagnosis journey Homocystinuria
08:17 Diabetes diagnosis
11:42 Foods to avoid that many may not know about
14:19 Daily struggles and choices
15:20 Clinical Trial for Homocystinuria
15:57 Diabetes wins the battle over Homocystinuria
20:06 obstacles of getting medical foods & Formula
25:07 Role of the Medical Nutrition Equity Act (MNEA) in Jessica's life
28:09 Advice to others in similar situations
30:16 Finding support & coping mechanisms
33:17 Advice for new diabetes patients
34:38 misconceptions about diabetes & Homocystinuria
37:03 Hopes for the future
38:41 Support Networks that have been helpful
39:49 How you can get involved
41:05 Conclusionhe finds support. #DiabetesAwareness #Homocystinuria #WhyNow4MNEA
