On Aces Interviews today I’m chatting with David Rose. David lives with an ultra-rare disease known as occipital horn syndrome. He works for Rare Revolution Magazine - a rare disease magazine based in the UK. David also volunteers for Great Ormond St Hospital and is a trustee for Mitrofanoff Support.
Find out more about David:
Instagram: @occipitalhornadvocate
LinkedIn: https://www.linkedin.com/in/drose2/
WATCH FULL INTERVIEW VIA BIO OR STORY
#AcesInterviews #vodcast #conversationstoempower #rarediseases #occipitalhornsyndrome #accesstowork #disability #accessibilty
@rarerevolutionmagazine @greatormondst @mitrofanoff_support
Find captioned version HERE
