Source: https://laist.com/news/health/how-to-better-support-loved-ones-with-dementia-along-with-their-family-caretakers
The LAist article highlights practical advice shared by a nursing expert and listeners on how to effectively assist caregivers, while the National Institute on Aging (NIA) resource provides comprehensive tips for everyday care, communication, safety, and self-care for caregivers. Both sources underscore the significant challenges faced by those affected by dementia and emphasize the importance of proactive planning, seeking support, and understanding the evolving needs of individuals with dementia.
Main Themes and Important Ideas/Facts:
1. The Arduous Nature of Dementia Caregiving:
- The LAist article opens by noting the tragic circumstances surrounding the deaths of actor Gene Hackman and his wife, Betsy Arakawa, highlighting the demanding nature of caring for someone with severe dementia like Alzheimer's.
- The NIA resource explicitly states, "Taking care of another person can be overwhelming at times." It further elaborates that "caring for a person with Alzheimer's or a related dementia takes time and effort. It can feel lonely and frustrating. You might even feel angry, which could be a sign you are trying to take on too much."
2. The Importance of Asking Caregivers What They Need:
- Heather Young, a nursing expert quoted in the LAist article, emphasizes that well-meaning outsiders often give unsolicited advice that isn't helpful. She advises, "The first thing to do is to think about what is needed — what would help the family?"
- Young stresses the importance of direct communication: "Young said it should start with a conversation with families and healthcare professionals."
3. Providing Respite and Practical Support:
- Both sources highlight the critical need for caregivers to have breaks. Young states that sometimes the best help is "temporarily taking over some care responsibilities, giving them a bit of respite — a chance to get out of the house."
- The LAist article features a listener, Jasmine, who found adult day care programs "life changing" as it provided scheduled breaks for her and her mother. Young confirms the value of these programs, noting, "Oftentimes the adult day care staff work with families to understand what triggers a behavior, what helps soothe someone if they get agitated."
- The NIA resource echoes this by advising caregivers to "Ask for help when you need it. This could mean asking family members and friends to help or reaching out to local services for additional care needs."
4. Navigating Family Dynamics and Accepting Outside Help:
- Young from UC Davis points out the reluctance some families have to accept outside help, stating, "It’s a natural inclination to [want] to keep your family business in the family." She notes that "about half of the family caregivers of people with dementia in California don’t get help from anyone else in managing their situation."
- For adult children wanting to get involved, Young suggests a gradual approach focused on building trust: "Explore with the parent what are they even seeing as important — what are the things that are stressful to them?" She cautions against rushing in to "fix situations and offer solutions before we fully understand what the person is really grappling with."
5. Thoughtful Ways to Check In on Loved Ones Living Alone:
- In response to a listener's question, Young suggests "less invasive ways of checking in," such as regular phone calls and reaching out to neighbors and friends to build connections.
- She recommends the California Caregiver Resource Centers and the California Department on Aging website a
