Hi guys, I'm Minie, #Italian special needs mum from #Sydney! 🇮🇹🇦🇺Welcome to our channel, where I share our daughter’s journey with #Kabukisyndrome.
In this podcast episode I interview Sharon, my first guest who will speak about the challenges of having a genetic chronic condition herself, while also advocating for her daughter (and son).
In this interview she touches the very important topic of medical gaslight and how hard it was for her to get a proper diagnosis, despite being dismissed many times by medical professionals who didn't recognise her condition.
Are you a special needs parent? Are you interested in being interviewed on How We...Special Needs? Let me know in the comments! 👇
You can find Sharon and her organisation here:
Website ➡️ https://anzfaid.org
Facebook ➡️ https://www.facebook.com/share/1CNWAmFxSF/?mibextid=wwXIfr
Instagram ➡️ https://www.instagram.com/autoinflammatory_aus_nz?igsh=MW9xdjEzbDZhYTVicA==
Did you like this episode? Let me know! 💕
Don’t forget to subscribe for more stories of love, strength, and Kabuki Syndrome.
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Check the website www.mykabukigirl.com for merchandise and so much more!👀
Stay safe, ciao! ☺️
