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Rayna Neises, ACC, host, and Aly Neises, RN, cohost, reflect on the conversation with Kelly Johnson who provided helpful tips for caregivers as they wear their advocacy hat while caring for a loved one. Additional insights shared:
- Doctors and other medical professionals need all available information . . . Try writing a letter or sending a message before appointments to provide your perspective and avoid the uncomfortable situation of sharing in front of your loved one.
- It is okay to ask questions and want more information . . . Just keep your loved one’s wishes at center focus.
- Being a good advocate requires you to speak up in a respectful way.
- Avoid getting wrapped up in your own emotions and feelings and ask, “Is this going to help with my loved one’s happiness or health?”
- Recognize that as a caregiver, you are an advocate for your loved one and embracing that will allow you to be a guide in the process.
- Advocate by doing research and talking to others with a different knowledge base.
- Be an advocate vs. a bully by focusing on finding a win-win where perspective is shared, and understanding is gained.
