In this week’s episode, Cara talks to Kirsten Schultz of the blog Not Standing Still’s Disease about her rare condition, Still’s Disease, and where it fits into the picture of autoimmune arthritis. They both make statements in response to last week’s Planned Parenthood attack, and they talk about growing up sick, blogging, what Kirsten hopes to do when she finishes her masters degree in Healthcare Administration, learning to be nice to ourselves, and PTSD.
You can find a written version of their statements about Planned Parenthood, as well as sources for the information Cara referenced here: http://www.insicknesspod.com/blog/2015/11/30/standing-with-planned-parenthood-now-more-than-ever
Links to recommended organizations for #GivingTuesday: http://www.insicknesspod.com/blog/2015/11/30/giving-tuesday
Kirsten's Blog, Not Standing Still's Disease: http://www.notstandingstillsdisease.com/
Kirsten's Still's Disease explainer: http://www.notstandingstillsdisease.com/2012/07/so-you-have-dragon-living-with-stills.html
Juvenile Arthritis Association: http://www.juvenilearthritis.org/
International Still's Disease Association: http://www.stillsdisease.org/
More information on systemic Idiopathic Juvenile Arthritis (pediatric Still’s) from the American College of Rheumatology: http://www.the-rheumatologist.org/article/systemic-juvenile-idiopathic-arthritis/
More information on Adult Onset Still's Disease from the National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/adult-onset-stills-disease/
More information on Post Traumatic Stress Disorder from US Department of Veterans Affairs’ National Center for PTSD: http://www.ptsd.va.gov/public/index.asp
More information on PTSD from the National Alliance on Mental Illness: https://www.nami.org/Learn-More/Mental-Health-Conditions/Posttraumatic-Stress-Disorder