In today’s main episode Jen talks about needing regular opioid pain medication at a time when those medications, and the people who use them, are public enemy number one. We talk about why she needs access to these medications, and discuss the important distinctions between addiction, abuse, and dependence, and the many tradeoffs and compromises we often have to make in treating chronic health conditions.
In today’s bonus episode, we talk about cognitive difficulties and brainfog, privilege and the response to the current opioid epidemic in contrast with the response to the crack epidemic in the 80’s, and the social isolation of chronic illness.
Episode page: http://www.insicknesspod.com/blog/2016/3/2/22-pain-is-personal
More information on Ehlers-Danlos Syndrome from the EDNF: http://ednf.org/what-eds
"Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder with Mucocutaneous, Articular, and Systemic Manifestations” M Castori, ISRN Dermatology: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3512326/
More information on POTS from Dysautonomia International: http://dysautonomiainternational.org/page.php?ID=30
More information on Osteoarthritis from the Arthritis Foundation: http://www.arthritis.org/about-arthritis/types/osteoarthritis/
More information on Hip Dysplasia from the Internation Hip Dysplasia Institute: http://hipdysplasia.org/adult-hip-dysplasia/
More information on Supraventricular Tachycardia (SVT) from the journal Circulation: http://circ.ahajournals.org/content/106/25/e206.full
03 Accessibility Means More Than Ramps (Part One) with Rebecca: http://thedword.tumblr.com/post/135331119091/opioids-stigma-and-the-cdc
Cara on the Just Talking Podcast: http://www.insicknesspod.com/blog/2015/11/17/caras-interview-on-the-just-talking-podcast
The Dysautonomia Series from In Sickness + In Health: http://www.insicknesspod.com/blog/?tag=Dysautonomia+Series
11 What a Pain w/ Jill Fancher PhD: http://www.insicknesspod.com/blog/2015/12/14/11-what-a-pain-w-jill-fancher
Vocabulary and resources for Dr. Jill’s episode: http://www.insicknesspod.com/blog/2015/12/14/resources-episode11
“What percentage of chronic nonmalignant pain patients exposed to chronic opioid analgesic therapy develop abuse/addiction and/or aberrant drug-related behaviors? A structured evidence-based review” Fishbain et al. from the journal Pain Medicine: http://onlinelibrary.wiley.com/doi/10.1111/j.1526-4637.2007.00370.x/full
“An epidemic of chronic pain: The crackdown on prescription drug abuse is treating the wrong problem” from The Boston Globe: http://www.bostonglobe.com/magazine/2013/12/08/crackdown-prescription-drug-abuse-treats-wrong-problem/Sj3FrZvDKeaMOykCHSswjK/story.html
"The Likely Cause of Addiction Has Been Discovered, and It Is Not What You Think” from The Huffington Post (terrible title, interesting piece): http://www.huffingtonpost.com/johann-hari/the-real-cause-of-addicti_b_6506936.html
The D Word: Jen’s Tumblr about being disabled http://thedword.tumblr.com/
Jen’s post “Opioids, Stigma, and the CDC”: http://thedword.tumblr.com/post/135331119091/opioids-stigma-and-the-cdc
Jen’s interview with Only Human: http://www.wnyc.org/story/painkiller-addiction-narratives/
“A Doctor’s Love Affair With Vicodin” episode from Only Human: http://www.wnyc.org/story/doctor-addicted-vicodin/
“Your Sanity or Your Kidney’s” episode from Only Human: http://www.wnyc.org/story/your-sanity-or-your-kidneys-revisited/
The Sick and the Dating blog by Chelsea Freund: http://thesickandthedating.com/
As I Live and Breathe blog by Nikki Seesfeldt: http://ilivebreathe.com/
Tune in to #Sickadilly chat on Friday March 4 at 3pm EST: https://blab.im/nikkiseefeldt-sickadilly-chat-5-crowdsourcing-tough-medical-diagnoses
Archived #Sickadilly chats: https://blab.im/nikkiseefeldt
