In today’s episode, Chelsea talks about her long term mystery symptoms doctors labelled an unknown rare disease, her complicated relationship with shunts placed to relieve intracranial pressure, her recent Lyme Disease diagnosis that may or may not explain everything, and the lack of knowledge and research that makes that still unclear.
In today’s bonus episode, we talk about the emotional trauma of being undiagnosed for so long, positivity and inspiration porn, her blog and misadventures in dating, and the sometimes dangerous business of being a woman in the world.
Episode page: http://www.insicknesspod.com/blog/2016/3/16/24-buildi
Information on Allopecia universalis from the NIH: https://rarediseases.info.nih.gov/gard/614/alopecia-universalis/resources/1
Information on Fibromyalgia from the National Fibromyalgia Association: http://www.fmaware.org/about-fibromyalgia/
Information on Hashimoto’s disease from Mayo Clinic: http://www.mayoclinic.org/diseases-conditions/hashimotos-disease/basics/definition/con-20030293
Hydrocephalus Fact Sheet from the NIH: http://www.ninds.nih.gov/disorders/hydrocephalus/detail_hydrocephalus.htm
About Lyme Disease from LymeDisease.org: https://www.lymedisease.org/lyme-basics/lyme-disease/about-lyme/
The Lyme Wars from The New Yorker: http://www.newyorker.com/magazine/2013/07/01/the-lyme-wars
"Ticked Off--What We Don't Know About Lyme Disease” from Forbes: http://www.forbes.com/sites/judystone/2015/06/11/ticked-off-what-we-dont-know-about-lyme-disease/#727409f332a7
Chelsea’s Twitter: @kiwifreund
Chelsea’s Blog: http://thesickandthedating.com/
#SickadillyChat #5: Crowdsourcing Tough Diagnoses: https://blab.im/nikkiseefeldt-sickadilly-chat-5-crowdsourcing-tough-medical-diagnoses
This week’s #SickadillyChat: https://blab.im/chelsea-friend-sickadillychat-the-challenge-of-superbugs
Stella Young’s TEDx talk “I’m Not Your Inspiration, Thank You Very Much”: https://www.ted.com/talks/stella_young_i_m_not_your_inspiration_thank_you_very_much?language=en
"CDC Opioid Guidelines Released” from The National Pain Report: http://nationalpainreport.com/cdc-opioid-guidelines-released-8829808.html
Episode 22 Pain is Personal: http://www.insicknesspod.com/blog/2016/3/2/22-pain-is-personal
