In today’s episode friend of the podcast Abby Norman (from episode 16) and I got together to debrief about the Endometriosis Foundation of America conference we attended. We actually didn't wind up talking about it much (sorry! ¯\_(ツ)_/¯), but we covered some of it, what patients really need until there's more consensus on how to treat the condition, medical debt, menstrual stigma, bleeding on things, personal care, and living with chronic fatigue.
Episode Page: http://www.insicknesspod.com/blog/2016/4/27/29-digital-red-tent
What is Endometriosis?: http://www.endofound.org/endometriosis
My post about the Endofound Patient Awareness Day: http://www.insicknesspod.com/blog/2016/4/18/endofounds-patient-awareness-day
It was Lone Hummelshoj who gave that great talk about painful sex with Endometriosis: http://endometriosis.ca/about/board/lone-hummelshoj/
Jhumka Gupta MPH ScD spoke about framing Endometriosis as a public health and social justice issue, which she also wrote about for the Huffington Post: http://www.huffingtonpost.com/jhumka-gupta/endometriosis-is-a-social_b_5986690.html
Find out more about opportunities to participate in research: http://www.endofound.org/research-opportunities
Endofound’s ENPOWR Project: http://www.endofound.org/the-enpowr-project
Clue: https://www.helloclue.com/
Abby on Twitter:
Abby’s writing: https://medium.com/@abbymnorman
Ask Me About My Uterus: https://medium.com/ask-me-about-my-uterus
"What if female characters menstruated”: https://medium.com/ask-me-about-my-uterus/what-if-female-characters-menstruated-caf2399a6d#.volt76eal
"Lies women are told about their bodies”: https://medium.com/ask-me-about-my-uterus/lies-women-are-told-about-their-bodies-b12e3159929#.t5mh19fbn
"How medical debt in the US just got (a little) less scary” from The Guardian: http://www.theguardian.com/money/us-money-blog/2015/mar/12/how-medical-debt-in-the-us-just-got-a-little-less-scary
"Kiran Gandhi discusses free-bleeding while running the London Marathon, and using the period as protest” from NYTimes Women In the World: http://nytlive.nytimes.com/womenintheworld/2015/08/11/kiran-gandhi-discusses-free-bleeding-while-running-the-london-marathon-and-using-the-period-as-protest/
Esmé Wang’s piece "I'm Chronically Ill and Afraid of Being Lazy” on ELLE.com: http://www.elle.com/life-love/a35930/chronically-ill-afraid-lazy/
"But You Look Good: Living with Disbelief of Invisible Illness and Pain” from The Princess in the Tower: http://princessinthetower.org/but-you-look-so-good-living-with-invisible-chronic-illness-and-pain/
