In today’s bonus episode, we talk about needle phobia and figuring out Soul was autistic late in faer teens.
In today’s episode we talk about some of what Soul has been through during faer childhood, including three skin expander surgeries following the removal of a birthmark on Soul’s head. Fae talk about those surgeries, being undermedicated most of that time, finding out about a codeine allergy the hard way, not realizing how traumatic it all was until later, and how that’s complicated the process of transitioning from pediatric to adult care.
Episode Page: http://www.insicknesspod.com/blog/2016/2/16/20-lowkey-traumatic
More information about tissue expansion (skin expander) surgery from the American Society of Plastic Surgeons: http://www.plasticsurgery.org/reconstructive-procedures/tissue-expansion.html
More information about maltreatment of disabled children in schools: http://www.greatschools.org/gk/articles/abuse-of-kids-with-disabilities/
Resources for transitioning from pediatric to adult care from Got Transition: http://www.gottransition.org/youthfamilies/index.cfm
Information on Understanding Gender from genderspectrum: https://www.genderspectrum.org/quick-links/understanding-gender/
Fear of Needles on Wikipedia: https://en.wikipedia.org/wiki/Fear_of_needles
Information about Autism from the Autistic Self Advocacy Network: http://autisticadvocacy.org/home/about-asan/about-autism/
