In this episode of the podcast, you’ll hear me talk to a handful of ePatients about sharing their own stories and the delicate balance of telling the stories of others. These conversations touched on themes of identity, privacy, patient experience, using technology to find connection, and ways in which we’re trying to compensate for the many deficits that exist in our healthcare system through that connection and storytelling. This episode was created for the Stanford Medicine X ePatient Storyteller Track. All clips were recorded at the 2016 MedX conference at Stanford University School of Medicine in September 2016.
Project Page: http://www.insicknesspod.com/storytellers
Cara’s other ePatient Storyteller Track projects: http://www.insicknesspod.com/medx-2016/
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Voices Featured in the Episode:
Michael D. Fratkin, MD [04:15]: MedX Presenter, Palliative Care Physician, Founder of Resolution Care
Christopher Snider [11:45]: ePatient member of the MedX Executive Board, Podcaster
Person Living with Type 1 Diabetes
Dawn M. Gibson [15:25]: ePatient Storyteller, Caregiver, Blogger, Founder of #SpoonieChat
Person Living with Ankylosing Spondylitis and Food Allergies
Liz Salmi [23:25]: ePatient Presenter, Healthcare Communications Strategist, Co-Founder of #BTSM
Person Living with Brain Cancer
Ryan Prior [26:35]: ePatient Storyteller, Multimedia Journalist, Social Entrepreneur
Person Living with Chronic Fatigue Syndrome
Melissa [29:15]: ePatient Storyteller, Blogger
Person Living with Primary Sjögren's Syndrome
Ally [44:30]: ePatient Advisor, Blogger
Person Living with Type 1 Diabetes
