In our February episode of the IFOPA podcast series, IFOPA Family Services staff Hope Newport interviews Shannon von Felden, Rare Disease Legislative Advocates and Katie Burns, SmithSolve to discuss why it's important to share your rare disease experience, what to keep in mind when speaking to others and two programs which were established to support the rare community in using their words as a vehicle for creating change.
FOP community members residing in the United States can participate in the following programs
Learn more about the Fast Forward for Rare Program by visiting their
websiteSign up to participate in Rare Across America programming from February 22 to March 5, 2021
