"If I'm moving, I'll stay warm. But also if I'm moving, I might not notice as much pain as I'm in until I sit down and then I realize, Oh, my gosh, I can't move for the rest of the day. I've used up all my spoons." — Emily, 11 Days Until Uterus Eviction Day
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In This Episode:
We're at the podcasting at the playground today and thinking about how even a trip to the playground takes planning and energy rationing when it comes to dealing with unpredictable pain.
It's funny how I didn't realize how much Adenomyosis snuck up on me over the years until I'm exhausted and can barely get out of the car in the middle of the day and realize "this isn't normal…"
Have you heard of the Spoon Theory? Coined by blogger Christine Miserandino, it's a metaphor to describe the amount of finite energy someone with chronic pain and illness has for the day and how we have to ration our "spoons." Some activities use more "spoons" than others.
Adenomyosis has me in this Goldilocks prison of being in pain when it's "too hot" and "too cold," and maybe *just maybe!* it won't be so bad when it's "just right." (Maybe)
I swear, I'm not in a bad mood — that's just my face: An RBF Memoir.
One day, maybe I won't drive 35 minutes to a playground just so I can comfortably sit in the car.
Note from Future-Emily:
At the end of the episode, I had to cut it short because my son had fallen and was upset. He's totally fine and nothing was seriously hurt that day, don't worry ;-) Also, not to spoil Seasons 3 and 4 too much, BUT the difference between my energy on the day I recorded this and after surgery is unbelievable!
Additional Links and Resources:
Links not working in your podcast player app? Visit ThatsHystericalPodcast.com
Adenomyosis - Symptoms — Mayo Clinic
Adenomyosis - Diagnosis + Treatment — Mayo Clinic
Adenomyosis: A Significantly Neglected and Misunderstood Disorder - Book by Maria Yeager
Helpful Reddit r/hysterectomy Post To Read If You Have Pre-Op Anxiety — MamaO2D4
Adenomyosis: An update regarding its diagnosis and clinical features — PubMed
Disclaimer: This podcast is based on personal experience and should not be taken as medical advice. Resources are provided for you to look into further and talk with your medical support team about.
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