We talk acromegaly with Ellen Ko.
Ellen Ko was diagnosed at age 26 with acromegaly due to a pituitary tumor. Acromegaly is a growth hormone condition which affects every aspect of the body - it causes changes inside and out, and both physical and mental. She underwent surgery and is on a medical regimen which has stabilized and controlled her hormone levels.
Over two decades after her diagnosis, Ellen continues to be an active acromegaly community member and patient advocate. For patients or caregivers dealing with acromegaly, Ellen recommends visiting acromegalycommunity.org/ and reaching out to others for support.
Despite her health condition, Ellen enjoys being involved in theater as an actor, artistic director, and professor. She lives with her husband and two chihuahuas in New York City.
Follow Ellen at @ellenkogram on Instagram
Show transcript bit.ly/3UKUymI