Today I'm introducing you to Jenny Hull, a single mom to Josie who just turned 20 years old. Jenny is also the CEO and founder of a nonprofit organization called Once Upon a Room. They are changing the game for kids in hospitals, and we'll get into all the amazing things they do toward the end of our conversation. Jenny is one of the most comforting and compassionate people I've ever had the pleasure of talking with, and her family story is unlike any other - from head-conjoined twins given less than a 1% chance of survival, to adoption, to starting a nonprofit with the help of two incredible teenagers. I can't wait to share this story with you!
In this episode, we talk about…
[1:12] Meet Jenny Hull
[2:40] When Josie and Teresa came into Jenny's life
[5:42] Helping Josie to thrive
[8:45] Teresa's story
[11:41] Discussing the twins' medical issues with Josie over the years
[16:31] Staying on top of medical and therapy appointments as a single mother
[22:10] The evolution of Once Upon a Room
[31:30] The requirements for having your room decked out
[36:56] Connect with Once Upon a Room and check out their work
When parents feel empowered, everyone wins – kids thrive and the care team excels!
Learn more here.
Meet the host:
Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.
The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided.
