What would you do if your child’s life depended on money, not science?
Aria Flynn is four years old and one-in-8-billion: she has a unique LONP1 mitochondrial mutation with no UK NHS treatment path. Her parents, Chris and Adriana, are looking for solutions. They know exactly where to go to get Aria the help she needs when they have the necessary funds. In this conversation, Chris (founder of Flynn Product Design) shares Aria’s story, and the plan that could change her trajectory: drug repurposing now, ASO development next, and gene therapy in the longer term. The blocker? Funding.
If you’re in the ideas business - creatives, founders, producers, researchers, philanthropists - this episode is your brief. We’re looking for:
• Introductions to labs, foundations, or major donors
• Creative ideas to reach the people who can move millions
• Media opportunities to amplify Aria’s story
And time matters.
CHAPTERS
1 Introduction and Aria's Story - 00:00:00
2 Understanding Aria's Condition - 00:03:00
3 Challenges with the NHS - 00:09:00
4 Global Treatment Options - 00:15:00
5 The Role of Community Support - 00:21:00
6 Call to Action and Future Hopes - 00:27:00
ABOUT THE HOST
LinkedIn: www.linkedin.com/in/traceyburnett
Website: www.leadstosuccessglobal.com
Got a question? Give me a call: 0044 7877 042 804
Book a call: https://bit.ly/leadstosuccess-book
Email: tracey@leadstosuccessglobal.com
Donate to Aria: https://www.justgiving.com/campaign/solesurvivor
Learn about LONP1: https://www.curelonp1.com/ curelonp1@gmail.com
Connect with Chris: https://www.linkedin.com/in/flynnproductdesign/
