Rachel is a certified Family Nurse Practitioner with over 13 years of experience working at one the most prestigious hospitals in the world. She is a former critical care nurse and nurse educator; teaching in both the clinical and classroom setting. After noticing changes in her infant son's behavior, Rachel took matters into her own hands and began to get a second (and third) opinion to receive the devastating news that he had Hydrocephalus, an incurable brain disease that is caused by excessive fluid buildup inside the brain. Rachel now has this inside and outside perspectives of the healthcare world to help shine a light on boundaries to set and ways to advocate for yourself and your loved ones.
Key Takeaways
[00:03:17] Trusting medical professionals vs. self-advocating
[00:09:17] Diagnosis impact
[00:14:32] Seeking multiple medical opinions
[00:19:13] Overcoming challenges with neuroplasticity
[00:23:24] Importance of a team you can trust
[00:26:30] Setting boundaries with medical providers
[00:33:13] Mishandling of care
[00:37:26] Understanding empathy in healthcare
[00:41:09] Limitations of medical providers
[00:46:09] Hope for Hydro
Where to Find Rachel
LinkedIn – Rachel Malec
Facebook – Rachel Malec
Instagram – @RachelMalec
Website – HopeForHydro.Org
How to find us - Visit our website – hardnopodcast.com – for show notes, which include links to books and other helpful resources. Like what you hear? Please subscribe, rate and review so others can find us, and make sure to follow us on social media. We're @hardnopodcast on Instagram, Facebook, LinkedIn & YouTube.
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